Author: psychmedcomms

As we move away from the challenges of COVID we have been able to harness the benefits of online tools and reimagine our involvement and engagement delivery. In this article, we shine a light on some of the PPI activities from 2022 - 23.  Our…

We are delighted to have successfully delivered the UniQure Phase I/II gene therapy trial focussing on knocking down Huntington protein production within neurons in Huntington’s Disease, to three patients in Cardiff. This gene therapy is potentially curative or significantly slowing disease progression in this fatal…

As a Clinical Research Fellow in Neurosurgery, Susruta is working on identifying strategies for optimising the effective delivery of cell and gene-therapies to the brain, under the supervision of Professor Liam Gray.   About me I am a neurosurgical trainee currently taking time out of…

Participants, funders and principal investigators came together to discuss the key findings of a recent Cardiff University study, and to present resources that people with Parkinson's disease and their support partners can use when considering research participation. The LEARN study stands for 'listening to the…

BRAIN researchers have co-edited a book which examines the progress of cell therapies in the treatment of neurodegenerative diseases, published last November. Cell therapies are a promising development for the treatment of neurodegenerative diseases (NDDs) such as Huntington’s and Parkinson’s, which occur when nerve cells…

Lauren Griffiths is a Research Technician at Swansea University. Her recent research has centred around cholesterol, its function in the brain, and understanding its role in neurodegenerative diseases. Cholesterol is an essential molecule in the body, and especially in the brain, where it is the…

Around 145,000 people live with Parkinson’s in the UK, and it's the fastest-growing neurological condition in the world. For World Parkinson's Day, Dr Emma Lane from the BRAIN Unit discusses the disease and some things you may not know. What is Parkinson's disease? Parkinson's disease…

Purple Day for Epilepsy takes place every year on March 26. To mark the global awareness day this year, Peter Roberts from BRAIN Involve has kindly shared his own story of being diagnosed with epilepsy and how he has supported neuroscience research at Cardiff University…

In the 2018-20 award, the BRAIN Unit received funding to develop an Electronic Patient Record (EPR) system supporting clinical care and deep patient phenotyping in Multiple Sclerosis (Cardiff and Vale and Aneurin Bevan), Parkinson's Disease (Abertawe Bro-Morgannwg) and Epilepsy (Cardiff and Vale). The system is…

BRAIN Involve would like to help researchers consider the benefits of involving the public in forming their research into neurological and neurodegenerative conditions. BRAIN Involve is a public involvement group made up of people who are, or have been, directly affected by neurological diseases such…