On Thursday 10 October 2024, Health and Care Research Wales hosted its annual conference in Sophia Gardens, Cardiff. The topic of this year’s event was ‘research matters’, and the drew researchers, clinicians and public involvement figures from across the country. BRAIN Unit Director, Professor Liam…
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International Ataxia Awareness Day 2024: Are you Ataxia aware?
Ataxia is a neurodegenerative condition which affects one in 50,000 people. This is Alan’s story, founder of a charity called Ataxia and Me. What is ataxia? Ataxia comes from the Greek word, meaning ‘lack of order’. People with ataxia experience problems with movement, balance and…
SEE MOREMeet the technician: Dr Chloe Ormonde
Dr Chloe Ormonde is a lab technician at the BRAIN Unit. In this piece, Chloe shares her career journey so far and why she enjoys working in the laboratory. About me I’m Chloe, and I’ve worked for the university for over 16 years. I studied…
SEE MORELaunch of the new Huntington’s Disease Centre in Wales marks a new era of collaboration
The BRAIN Unit were delighted to support the launch of the new Huntington’s Disease Centre in Wales which took place in Cardiff University’s Hadyn Ellis Building on Wednesday 8 March, 2024. Huntington’s Disease (HD) is an inherited neurodegenerative disease which causes brain cells to be…
SEE MOREBRAIN hosts PPI celebration event with the National Centre for Mental Health
On Saturday 20 April, BRAIN co-hosted an event with the National Centre for Mental Health (NCMH) to celebrate the importance of patient and public involvement (PPI) in research. Whilst BRAIN is developing and trialling advanced therapies for neurodegenerative disease and NCMH is looking into the…
SEE MOREJoin us to celebrate patient and public involvement in research
The BRAIN Unit and National Centre for Mental Health (NCMH) will co-host an event on Saturday 20 April to celebrate the role patient and public involvement groups play in research. The event will bring together public and patient involvement groups, researchers and the general public…
SEE MOREBRAIN Involve lead delivers public lecture on advanced therapies to treat neurodegenerative disease
On Thursday 7 December, our BRAIN Involve lead Dr Cheney Drew delivered a public lecture on the use of advanced therapies in Huntington’s and Parkinson’s Disease. The lecture was part of the Science in Health public lecture series, hosted by the School of Medicine at…
SEE MOREMeet the researcher: Dr Cheney Drew
My name is Dr Cheney Drew, and I am a Research Fellow and Senior Clinical Trials Manager based in Centre for Trials Research in Cardiff University. About me Outside of my work at Cardiff University, I have many passions, from ultra-marathon running to arts…
SEE MOREShining a light on Patient and Public Involvement and Engagement (PPI)
As we move away from the challenges of COVID we have been able to harness the benefits of online tools and reimagine our involvement and engagement delivery. In this article, we shine a light on some of the PPI activities from 2022 - 23. Our…
SEE MOREBRAIN successfully delivers the UniQure Phase I/II gene therapy trial in Huntington’s Disease
We are delighted to have successfully delivered the UniQure Phase I/II gene therapy trial focussing on knocking down Huntington protein production within neurons in Huntington’s Disease, to three patients in Cardiff. This gene therapy is potentially curative or significantly slowing disease progression in this fatal…
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