At the Advanced Neurotherapies Centre, we recognise the value that including the patient voice can bring to the development of novel treatments. We strive to include both public involvement and evaluation of participant experience across all our work with industry and university partners.
This ensures that we are constantly working towards meeting the needs of all stakeholders whilst remaining responsive to the fast-changing field of advanced therapeutic medicinal product development.
Our published protocols and patient-focused research are improving how clinical trials are designed and run for evaluating advanced therapies.
This work is now being shared with and adopted by national and international research groups such as the NHS England ATMP PPIE working group (ATM Engage), EuroGCT, SC4HD, CPath and G-Force PD, as well as charities such as Parkinson’s UK, Cure Parkinson’s and Huntington’s Disease Association, permitting rapid dissemination and impact.
BRAIN Involve
Find out more about how you can use your experience to shape research by joining our public involvement group BRAIN Involve.